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Top: Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Marfan Syndrome (40)
See Also:
 Marfan Syndrome - Comprehensive guide to this connective tissue disease.University College London: The Timing of Elective Aortic Root Replacement in the Marfan Syndrome - Includes a survey for study and links to useful sites. Virtual Support Group - Personal stories. Also includes links to major Marfan support sites and a guestbook for patients and their experience. Marfan Association UK - The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue. National Marfan Foundation - Providing accurate and timely information about the disorder to patients, family members and physicians. Marfan Syndrome - Includes clinical signs of the disease along with current research, help groups, images of people affected by the disorder and a fair amount of references. Marfan-List - Information about an e-mail mailing list. Also includes links to other online support groups. Jeanette Navia's Marfan Life Website - Including lists of penpals and other ways to connect with the community as well as information about the Syndrome. Canadian Marfan Association - Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease. Stanford University Marfan Center - Research, testing and care for Marfan Syndrome and related connective tissue disorders, with a list of FAQs. Life and Issues of Marfan's Syndrome - Personal site by which describes the pathology and gives a bit of advice. Slovak Marfan Association - The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care. American Heart Association - Marfan's Syndrome - Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions. Yahoo! Support Group - Started by a person with the syndrome, this site offers support for any person with the disease as well as family of the person. International Federation of Marfan Syndrome Organizations - A global information center providing links to Organizations around the world. OcularTimes.Com--[Marfan's Syndrome] - A quick summary with a focus on the accompanying eye problems. An informative guide to eye disorders and related eye care topics. Family Practice Notebook - An outline of the disease with links to more information on the major symptoms. eTenet - Marfan's Syndrome - Definition, description, symptoms and even treatments are covered here. There is also a list of questions one should ask their doctor. Marf Kids Club - Includes short stories on multiple kids with the disease along with a link to a Marfan Web Ring. eCureMe.com -- Marfan's Syndrome - Description, symptoms, diagnoses, treatment and other information with a couple of similar disorders for comparison. Congenital Heart: Marfan's Disease - Yale - Sole discussion of the heart issues and includes some video footage of echocardiograms and other heart studies. Univ. of Washington - Marfan Syndrome - What the disease is and includes the impacts on daily life. MFS Type 1 Fibrillin Gene - A comprehensive site including major resources listed as well as genetic information. MedicineNet.com - Marfan Syndrome - A Question-Answer format page of information. Health Supervision for Children with Marfan Syndrome - Includes symptoms as well as how to deal with learning one has it. Polish Marfan Association - General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations. General Practice Notebook - Marfan's syndrome - Clinically-oriented information. Swedish Marfan Association - Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association. Marfan Syndrome Forum - Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research. Central Ohio Support Group - Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings. The Mystery of Akhenaten: Genetics or Aesthetics? - A history of the pharoah along with theories applied to what he may have had, including Marfan's. The Lavin Family and Marfan's - Personal experience with the cardiac aspects of the disease, along with familial diagnoses. Children's Heart Institute: What is Marfan Syndrome? - Includes information on heart, skeletal, eye, other, causes, risks, management, and Surgery. Assisted by many graphics and a "tour" to help understand the disease. Marfan's Syndrome: Information and Support - Features forums, @marfanssyndrome.net email addresses and contains symptoms as well as guestbooks for both doctors and patients, a chat room, scheduled chats with professionals and links to its own Yahoo Support Group Theresa E. Pageau - A Memorial Tribute - A tribute to a patient with this disease accompanied by information and links related to donating. A Diary about Marfan's - Marfan's patients diary of the diseases events in her life. Includes a list of links. Marfan Syndrome: Does Diet Play a Role - Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet. Also examines this role in other disorders. Awareness - Intended to raise awareness of this disease. MyDiseaseDex - Marfan Syndrome - An overview including terms and books associated with Marfan's. The FBN1 Gene Mutations Database - Focuses on the gene that is believed to cause the syndrome. Includes links to software and general information about the disorder.
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